Avery’s Bucket List Blog Raises Awareness of Newborn’s Heart-Wrenching Illness
“Imagine you’ve been diagnosed with an incurable genetic disease and you are told you will not only lose your ability to walk and move your arms, but you will die between now and the next 18 months. What would you do?”
The parents of 5-month-old Avery Lynn Canahuati, who’s suffering from spinal muscular atrophy, had to ask themselves this same question. Their answer? Avery’s Bucket List Blog.
After Avery Lynn was diagnosed with this illness, the doctors said she would only live to be about 23 months. According to the National Library of Medicine, “Infants with SMA type I are born with very little muscle tone, weak muscles, and feeding and breathing problems.”
Laura and Mike Canahuati, in response to this devastating situation, acted in a truly admirable and heartwarming way. They created an online photo journal that not only acts as their child’s bucket list, but also seeks to raise awareness of spinal muscular atrophy and the other infants who are suffering with it.
Check Out Pics of Avery Lynn with the Texas Sugar Land Skeeters Baseball Team
The only thing the Canahuati family is asking of you is to share their daughter’s story to as many people as you can, in the hopes that one day routine SMA testing will be offered and future sufferers will be saved.
[via The Huffington Post]